Born Sunday, July 11, 2010

Born Sunday, July 11, 2010

Thursday, August 12, 2010

Sullivan Graduated!


Sullivan is now happily resting in the Pediatric Cardiac Unit at Riley, he is movin' on up in the world and hopefully next week he will be movin' on out! YES, Steph and Casey were told that their sweet baby boy could be home as early as next week.

Sully is doing amazing and is amazing! This little man is already smiling! He knows how wonderful life is and he knows how much he is loved. I am beaming with pride. Today, he proved once again what a quick learner he is and drank his first bottle! He is still on a special formula but we all remain hopeful that he will soon be guzzling down the gallons of breast milk awaiting him in the freezer. The health of his thoracic duct is unknown at this time, but will be readdressed after ample healing time has passed. I word Stephanie and Casey have heard too too many times . . . patience. Healing will take patience. Patience and prayer.

Sully's heart rate and breathing rate still remain a little higher than what is expected, but again patience is proving that these numbers are very slowly decreasing daily. Most likely he will still be monitored when he does come home . . . but he IS coming home! And he IS coming home soon! Thank you Lord, thank you to all of you who have loved, and prayed and embraced Stephanie, Casey, Sullivan and Leo from a distance. I know they feel you lifting them up and moving them through each battle, each moment that lasted an hour and each night they must say goodbye and come home to an empty crib.

God is good, even when you think life is "unfair" . . . God is good. This horrible tragedy that is consuming my family . . . and yet I see overflowing blessings as a result of it everyday. I can now see how the stars aligned and the tide rolled in at just the right moment to make this situation survivable for my family . . . to take a child from death and place him back into the light of life. Tragedy will happen with or without God, but the miracles can only happen with Him. And the miracles are what get you through to the other side. Each of you that have read this blog, that have shared this story, that have looked at Sullivan's innocent face are one of these miracles. I thank God for you. And I thank you for carrying Sullivan with you in your hearts throughout you stressful and busy lives. If I could hug each and everyone of you I would and I know Stephanie and Casey would do the same. I apologize for my babbling and "preaching" of miracles . . . I am just so grateful, and so surprised at human kindness.

Love and Blessing to you all, and one HUGE hug that lifts you up to the sky and spins you back round!

Aunt Angie

3 comments:

  1. So so glad that all is going well. He is just adorable. I LOVE those pictures of him smiling - and can't believe he is smiling already! I will continue to keep all of you in my prayers. Nicole Kelker

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  2. So incredibly happy to hear that he is doing so well. What a handsome little man -LOVE his smile! Continued thoughts and prayers coming your way as he continues to heal and for patience for Steph, Casey, and Leo. :)

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  3. Thank you, Angie, for the update and the photos! You are a beautiful writter. I Used a box of tissue as I read your note and studied the photos of gorgeous Sully and his beautiful Mommy and Daddy.
    Each time I leave our house I pass a note that says "miracles are everywhere". It reminds me to pay attention to the little things in life. Sully's smiling face is my reminder of God's power. Go Sully Go. Keep heading for home. Soon you'll be slumbering, uninterupted, in your own crib!
    Our love to you all,
    The Wiese's

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